Lots of good news, lots of confusing news, and a bit of bad news.
The orthopedic doctors came by early this morning, and withdrew Will’s drainage tube halfway, and plan to remove it entirely tomorrow. The wound is draining nicely, and he seems to be less sensitive about his left leg, although he’s still not really using it. We only saw them for a few moments, so we still have a number of questions that we need to ask them, but they think he’s doing quite well.
As for the infection itself, Will is doing well, and has been removed from isolation, so there’s no danger of him infecting or being infected by other kids. We’ve talked at length with the infectious disease doctors this morning, and while they’re still a bit confused about why and how Will got this infection, they’re confident that the antibiotic he is on is the correct one. They’ve said that they don’t know how he got sick, or why he never really got a fever or looked ill, and that this germ is an unusual one to infect a two-month old. They’re going to want to see him again, and will talk with the immune systems doctors to see if any further tests on Will’s immune system are in order, but that they don’t see any specific reason for concern in that area.
The bad news – Will is probably going to need antibiotics intravenously after he’s discharged, which meas a PICC line:
PICC stands for: Peripherally Inserted Central venous Catheter. This intravenous catheter is inserted through the skin, into a vein in the arm, in the region above the elbow and below the shoulder. This is a peripheral insertion. The catheter is a long , thin tube that is advanced into the body in the veins until the internal tip of the catheter is in the superior vena cava, one of the central venous system veins that carries blood to the heart.
They’re thinking that we’ll need a home health-care service to help us with this, and that he’ll need doses every eight hours for four-to-six weeks. This, of course, leads to all kinds of questions:
- Can Will go to day-care?
- Will the day-care be comfortable caring for a kid with a PICC line?
- Are we comfortable asking them to?
- If he’s not going to day-care, will Pam or I stay home with him?
- With either of our employers be OK with that?
I’ll post some more pictures in an moment. Will is awake and alert and feeling fine, so it’s a good time to do so.
Thanks again to everybody who’s called or written to share their love and support. It’s been invaluable, and very appreciated.