Archive for November, 2007

Nov

27

Will is really feeling great. His appetite is back where it was last week, and he's starting to move his left leg around noticeably during his twice- or thrice-daily thrashing sessions. While yesterday morning I was very discouraged, tonight I am really happy with how he's progressing. His PICC ...
The staff here has located a home health care company in Urbana to help us administer the IVs intravenously via the PICC line when we get home. Will hasn't eaten since 6 AM, as they're trying to prepare him for the sedatives required for the PICC line operation. It appears, ...
Lots of good news this morning, after a good chat with the orthopedic pediatrician team. Will is recovering well, and there should be no long-term affects from any of this.  His drainage tube has been completely removed, and the incision on his left hip is healing nicely. Will needs to stay here ...

Nov

27

It's easy to forget will all the other stuff that's going on at the moment, but Will is two months old today. Here's what he looked like when he was two days old: As for his birthday request, he'd really like a fully functional left leg, an infection-free body, and discharge papers ...
I'm exhausted, so this is stream-of-consciousness. Will will almost certainly have a PICC line, as I mentioned in the previous post, to give him IV antibiotics for at least four weeks after he's discharged. An immune system specialist stopped by to chat this afternoon, asking lots of questions. Because of the ...